So it is time to share a little bit more about my funkadoodle disease. So sit back in your chair and prop your legs up.
What is wrong with that picture… aside from the fact that my Minnesota white girl legs are white enough to blind anyone? They are covered in bruises! It seems that the more active I become on my journey the more my body rejects my choices at every turn.
The type of ehlers-danlos that I was diagnosed with is called Classical Type-II. Patients have hyperextensible (stretchy) skin that scars and bruises easily, some hypermobility of the joints, and smooth velvety skin. They can suffer from sprains, dislocations/subluxations of the joints, flat feet etc along with the risk of hernias and surgical complications.
That part in there about the bruises easily… what an understatement. All those bruises on my legs, not a single one of them is from anything I can recall. They show up after I go running, or out for a long walk. They show up when I go play. Granted I get horrible bruises when I do things like hit my legs but these are all activity related, not because I was clumsy. I show others my bruised legs just to show how much of a pain in the ass my invisible illnesses can be. I have similar bruises on my arms and elbows from resting them on a table for too long. I have even bruised my rear from sitting down on a hard chair! Not cool!
I am sure you are thinking so what? They are just bruises, but they do hurt to touch, some of them contain tiny lumps. I often rub on some Burts Bees Res-Q ointment to try to fade them a bit quicker, but it seems like my effort is wasted, as one fades more just show up.
I feel as though my body is just fighting me as I try to become more active and try to stay active. I tell myself that my body is not a failure. It just wasn’t given the proper equipment for the jobs I am giving it. I guess I need to reach out and find others that are in a similar situation where their bodies are just not designed to handle the goals that they want to attain. There is nothing I can do to cure Ehlers-danlos. The only treatments available to me are things like joint protective measures and then treating the pain and injuries with traditional measures like rest and ice. It sucks. I am going to keep trying, Never Give up, never surrender… I just need to learn to stop feeling bummed about things I can’t control